Disability Training – MS Warrior Programme Week 5

Week 5 was another tough week. Life with MS is tough. Life with MS and a young family is, for me, even tougher.

 

Day 29 – Monday 5th November 2018

Monday was supposed to be an easy day for me. It was a mistake thinking this. We are having a new kitchen put in next week and a wall knocked down. This means everything in the kitchen and dining room needs to be relocated. This is why I tidying my garage last week. My wife was supposed to be sorting her stuff out in the kitchen on Monday; she was going to “blitz it” in her words (because she left it to the last minute). However, she hurt her back and could barely move, which meant yours truly had to step in and save the day.

 

I did so much on Monday; I did the school runs, the cooking, the cleaning and sorting the garage etc. And all on 4hrs sleep! Low and behold; the scheduled leg workout could not be completed. I’m seeing an unfortunate pattern emerging. Safe to say, I was a little more than annoyed with the way the day went.

 

 

Day 30 – Tuesday 6th November 2018

Tuesday was another crap day. I felt physically broken from the previous day. My limbs felt alien, my body was so exhausted and even breathing felt like an effort. I got myself together and got up to take Brooke-Haze to school. I came back, tired, grumpy and thought f**k it and did my abs workout.

 

After my workout I had my signature scrambled eggs and smoked salmon; then continued making space ready for the builders for next week. Ember had a late appointment with the doctors as she was burning up. We went to the doctors and after waiting 40 delightful minutes in the waiting room, she was diagnosed with an ear infection.

 

I was tired, angry and feeling so defeated by the end of the day. It literally felt like my body was slowly shutting down.

 

 

Day 31 – Wednesday 7th November 2018

I got to go into Brooke’s school and spend some time looking at her work and the techniques the teachers use so I can try and apply them at home. I sat uncomfortably on a table with five other mums discussing the best way to deal with one of their teenage sons having a girlfriend over. Being a teenage boy once myself, I was able to offer some sound advice in the matter.

 

Today was balance day. I like balance day. I have probably said this before but I try to do these exercises every day. Because of this, I was able to catch up and do the leg day workout from Monday. Yes!! I feel like I’m letting Dom and most importantly myself down when I miss a workout. However this is the reality with family and work, it is hard. Overall, it was a good day, I love seeing Brooke-Haze in her school life and seeing how she interacts with her friends.

 

 

Day 32 – Thursday 8th November 2018

Ember has really been through the ringer with her ear infection bless her. She has been waking up screaming early in the morning. Despite my advice, Laura went back to work today. Ember once again woke up early and I only got less than four hours sleep. With how the week was going I thought I must have done something terrible in a previous life. Ember had also woken Brooke-Haze up which was a blessing in disguise as she played nicely with her little sister whilst I got her medicine ready. Girls dressed and fed, off we all went to do the school run.

 

Biceps was today’s workout which I love. It’s my favourite workout. It’s effective, it’s short and I feel that burn in my biceps which makes me feel like I am one muscly sexy mo-fo (mirrors ruin this illusion so my advice; don’t look in one).

 

We had Brooke-Haze’s parents evening that night. She received a glowing report from her teacher. Her reading is excellent and no matter what the task, her teacher knows Brooke-Haze will give her 100%. I left feeling a very proud Daddy.

 

 

Day 33 – Friday 9th November 2018

In the afternoon, I felt like I had melted. My breathing felt heavy and laboured. I was exhausted, mentally and physically. I couldn’t keep my eyes open. I didn’t feel good at all. It’s days like that which make me realise I am ill and that I do have a chronic condition. I think a lot of the time I trick my own brain into thinking “I’m okay” “I can still do everything I used to.” Friday was a wake-up call. It made me really think about my body and the lasting effects that doing too much can have.

 

 

Day 34 – Saturday 10th November 2018

Ember had her first ever taster session of ballet. She had wanted to go (because her big sister goes) for weeks now. She was very shy to start with, but by the end (with a little help from big sis) she loved it. After ballet we went to see my Nan. I needed this. Last weekend I was so busy I hardly got chance to see or talk to Nan properly, and after the week I’d had, nothing sorts my mind out like talking to Nan. We sat and had a couple of cups of tea and put the world to rights whilst the girls watched a film. My brother also popped over which was nice and got to see my nephew Freddie. He is such a cheeky happy boy. Last week at Nans I got to attempt to feed Freddie his tea, I say attempt as I didn’t exactly succeed, but I did get some smiles from him and a funny frowny face. My brother and sister-in-law play such an important role in my girls’ lives, I want to do the same for Freddie.

 

 

Day 35 – Sunday 11th November 2018

We had to do the last bits to the house to get it ready for the work being done. Ember also had her first cinema trip as we went to see the Grinch. Ember loves the original one (the Jim Carrey one, assuming that’s the original one). She enjoyed it, but was a bit of a fidget bum.

 

 

Conclusion

Overall, in many ways this week has sucked, sucked massive hairy donkey balls. But it has also been a good week. I gained an insight into Brooke’s school life and got told how wonderful she is (which never gets old). I feel I have stayed on top on the programme with regards to the exercises. I have got better with the nutrition side (although I could do better). Also, I have had some lovely, uplifting, heartwarming messages from you lovely sexy warriors out there, for that I say thank you so much for keeping my spirits high when at times they’ve felt broken.

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2 thoughts on “Disability Training – MS Warrior Programme Week 5

    1. Hi,

      Thank you for your support, I do try to be as honest as I can be with how my life is with MS. There is a lot of positivity out there which is fantastic but the people who inspire me are those who are open with their struggles and share them as well as their triumphs. Sharing both is the only way to spreading real awareness of MS, so that is what I am trying to do. Thank you again so much for your support, it is really appreciated. Thanks Dave

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