My First Day of MS

My first symptoms appeared one Sunday evening after I returned home from playing tennis with my brother. I noticed a strange numb, tingling sensation in my right gluteus maximus (yes, of all the places my MS journey could start, it had to be my butt cheek). In my youthful naivety I assumed it was nothing to be concerned with and would clear itself up.

 

I woke up the next morning, and that “nothing to be concerned with” sensation had spread all the way down to my foot. I started to worry a little and made an appointment with my doctor. She tested my reflexes, and poked my leg & foot with a sharp pin. The sharp pin felt dull, like it was a finger prodding me. After she had finished treating me like a pin cushion, she sat back in her chair and said “I have never seen anything like this before.” Thanks Mrs Doctor, that’s so reassuring!

 

Dave-itis?

 

At the time I was only 19 and I didn’t know what to say. I replied with a bad attempt at humour, asking “can I name the condition if it’s new?” My doctor kindly declined my offer and instead decided it was best to refer me to a specialist at the hospital. I took the rest of the day off work and by the end of the day the tingling sensation was affecting the whole right side of my body.

 

Here comes the pain…..

 

Within a few days of noticing the first tingles, my whole body (except my head) was affected by this odd numb, tingling pain. Sharp objects felt numb, hot water felt lukewarm and cold water felt like my skin was being ripped off my body by knives.

 

As you can imagine, this made life very difficult. I couldn’t walk much, I couldn’t sleep and even clothes rubbing against my skin hurt. I spent most of my time in bed wearing shorts or loose clothing. I would try to make light of the situation the best I could  by making jokes about it.

 

 

 

 

My brother was very supportive (as always), he would come round and sit up with me some nights when I couldn’t sleep. It is how I learned how to play Sudoku, I guess every cloud has a silver lining.

 

The whole-body tingling sensation lasted a little over 4 months. In that time I had numerous MRI scans and blood tests, but nobody could tell me what was going on with my body. My neurologist never once mentioned the possibility of it being a chronic illness. I was concerned but never thought it would be serious. I always assumed it would get better and I would be fine. Being a teenager with a young healthy body, I presumed I’d be able to fight off whatever was happening to me.

 

I was wrong.

 

I’d love to hear about your first symptoms, so please leave a comment below.

 

If you have found this page because you are experiencing worrying symptoms and think you may have MS, please be brave and go to see your doctor.

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4 thoughts on “My First Day of MS

  1. Hi Dave! Thanks for sharing the beginning of your MS journey. I find it comical that you would name it! What would led you have named it!!??LoL

    My journey started in 2012, I had the flu, then never mind!!! I woke up and my body from the rib cage down was numb. It got worse I was seeing double, could not lift my right leg and vertigo and balance! Ugh, it hit me all at once. Although I truely believe that it started in my early 30’s. I just missed the signs I thought my eye sight was changing or I pinched a nerve….. it goes on but I would go to a different doctor each time for a different symptom, at my worse (I explained in the beginning) it was the ER and just one doctor.
    I was told by a 28 yr old who just got out of med school, I have MS. I was devastated, I had 4 kids at the time and my husband ended up leaving me.
    5 years later 2017 I finally started reaching out and seaking people who are going through the same trials I face everyday.
    Thank you for your blog, I look forward on reading more. Hope your well today 🙂

    1. Hi Carrie,

      Firstly, thank you for visiting & supporting my page I truly appreciate it. Secondly, thank you for sharing your experiences, I know how hard it can be to share personal feelings publicly, you are very brave, a true MS warrior. I’m glad you have found support in the MS community, I have found it to be a strong, supportive one. To be understood & not feel so alone is so vital in the fight against MS. You have survived through a great ordeal & you should be proud of yourself.

      Thank you again for taking the time to visit here, if I can be any help at all message me anytime on my Instagram or Facebook page.

  2. Thankfully, I have no memory of my first symptom, which, according to records held by my current ( there’ve been a few, lead to giagnosis in 1988).
    I do remember dad taking me to visit his this GP, in what must / may have been 1977 (when I would have been about 9. Dr X confirmed that the ‘prestation’ would probably pass….:
    since it was ‘only’ visual, & certainly non-painful…., dad and I left the surgery satisfied….!

    1. Hi Elizabeth,

      Thank you for your comments, it means so much to me people are taking the time to visit my site.

      Wow, you was only 9, so you was around 20yro when you was diagnosed? How did they make the diagnosis? I am currently writing about my diagnosis which I’m hoping to post very soon.

      Thanks again Elizabeth for your comments.

      Dave

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